Calling all people living with Myalgic Encephalomyelitis (whether you have a diagnosis or not, if you meet the diagnostic criteria…you’re in!) Our stories are precious, vital chronicles of our experiences. Too often, our voices echo only within the bounds of our community. But the people who truly need to hear us – doctors, psychologists, NHS …
This blog follows on from this ‘open letter’ I have posted the response received from Paralympics GB / Every Body Moves on social media in recent weeks but am now actioning the next step. Response received 7th September 2024. Dear Sally, Thank you for taking the time to write to us. We appreciate your concerns …
Hi, Many of you have now watched my short video on social media, this video was in reaction to the email received from DHSC in response to my letter relating to ME Foggy Dog’s NHS Protocol campaign. The response is as helpful as those received from the Health Ministers/Departments in Wales and Scotland. Here is …
Dear Members of the British Paralympic Association, I hope this letter finds you well. I am writing to you as a concerned supporter of the Paralympic movement, and as an advocate for the rights and dignity of chronically sick disabled people with Myalgic Encephalomyelitis worldwide. The Paralympics have always been a powerful platform, celebrating the …
Living with Myalgic Encephalomyelitis (M.E.) is a battle I never expected to fight. The symptoms are relentless—overwhelming neuro-exhaustion, cognitive difficulties, and a host of other challenges that make everyday life feel like a marathon with no finish line. Yet, the struggle is not just against the disease itself, but also against the widespread misunderstanding and …
Hi! 8th August 2024 will be a significant date. Tomorrow’s exploits have been 6 weeks in the making! BED for Severe M.E. is a collaborative project of ME Foggy Dog and Stripy Lightbulb CIC (two social enterprises founded by me, Sally Callow, a person living with M.E. since 2006 and a M.E campaigner since 2014). …
Hello! As you are hopefully aware ME Foggy Dog and Stripy Lightbulb CIC are working collaboratively on a project for Severe M.E day (8th August). This project has 7 components, one of which is a music project. This music project needs to have a video so it can be uploaded to YouTube. I have been …
Hello! I started a conversation on X and Facebook last month about Lasting Power of Attorneys and Living Wills that seemed to resonate with quite a lot of people living with Myalgic Encephalomyelitis. The topic is particularly pertinent right now as the absence of a Power of Attorney is an issue in at least one …
Hi, As M.E Foggy Dog supporters know, I started actively campaigning for an NHS protocol for severe M.E and better adherence to NICE guidelines in NHS hospitals in mid-February 2024. This blog specifically relates to the campaign for an NHS protocol. The NHS protocol is now 2 months along and I have made no progress …
I have been campaigning to address the non-adherence to Myalgic Encephalomyelitis NICE guidelines in NHS hospitals since 24th February 2024. This campaign began with an ‘open letter’ to the General Medical Council. As I stated at the time, I knew that what I/we were demanding was outside of the GMC’s remit, however what I/we are …
