Dear Members of the British Paralympic Association, I hope this letter finds you well. I am writing to you as a concerned supporter of the Paralympic movement, and as an advocate for the rights and dignity of chronically sick disabled people with Myalgic Encephalomyelitis worldwide. The Paralympics have always been a powerful platform, celebrating the …
Living with Myalgic Encephalomyelitis (M.E.) is a battle I never expected to fight. The symptoms are relentless—overwhelming neuro-exhaustion, cognitive difficulties, and a host of other challenges that make everyday life feel like a marathon with no finish line. Yet, the struggle is not just against the disease itself, but also against the widespread misunderstanding and …
Hi, As M.E Foggy Dog supporters know, I started actively campaigning for an NHS protocol for severe M.E and better adherence to NICE guidelines in NHS hospitals in mid-February 2024. This blog specifically relates to the campaign for an NHS protocol. The NHS protocol is now 2 months along and I have made no progress …
