Press Release – Open Letter to Secretary of State for Health and Social Care Victoria Atkins MP

[Embargo: For Immediate Release] Subject: Urgent Call for a NHS Protocol for Severe Myalgic Encephalomyelitis (M.E) To Secretary of State for Health and Social Care Victoria Atkins MP I am writing to you as a concerned citizen and advocate for individuals suffering from severe Myalgic Encephalomyelitis (M.E.), urging the immediate establishment of a dedicated National …

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Shake It Up: Email to Steve Barclay MP – Secretary of State for Health and Social Care

Shake It Up!

Hi, As I have said a few times on social media this week, the article in The Times and Action for M.E reinforced what I have been saying for 18 months with my Shake It UP campaign. I have had too many conversations with M.E patients and their carers in which I have been told …

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ME Foggy Dog’s Highlights of 2021

Hi, I don’t know about you but, for me, 2021 flew by! I’ve not kept track of what month we are in throughout the entire year! It’s all been very same-y and seasons have all blended from one to the other. I haven’t had the usual Foggy ‘milestones’ to judge where I’m at. This is …

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‘Shake It Up’ Campaign – Correspondence With Lord Kamall.

Shake It Up!

Hi, As I said in this video, the responses received from Lord Kamall and NHS CEO Amanda Pritchard have so far not addressed my concerns about the need for this new system to report harms from non-pharmaceutical ‘treatments’. I have not yet received a reply from Sajid Javid MP – Secretary of State for Health …

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Campaign For A New Mechanism To Report Harms from Non-Pharmaceutical ‘Treatments’ – A Collection Of Emails.

Hi, As a social entrepreneur with ME Foggy Dog, I started beavering away behind the scenes on a new campaign in mid-August 2021. I knew the NICE guideline publication was coming, I also fully anticipated a backlash and non-compliance to the recommendations. I pre-empted the publication and got to work. I believe in transparency so …

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APPGs on Myalgic Encephalomyelitis – Where are the minutes?

Hello, This will be a lazy blog post as I am ‘depleted’ of energy…or at least, I have just about enough left to type this up briefly! Watch this video http://https://youtu.be/1Qabwxufnlg Read these links – Guide to the rules on APPGs Myalgic Encephalomyelitis APPG Register of All Party Parliamentary Groups – M.E After reading and …

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