Hi, As M.E Foggy Dog supporters know, I started actively campaigning for an NHS protocol for severe M.E and better adherence to NICE guidelines in NHS hospitals in mid-February 2024. This blog specifically relates to the campaign for an NHS protocol. The NHS protocol is now 2 months along and I have made no progress …
[Embargo: For Immediate Release] Subject: Urgent Call for a NHS Protocol for Severe Myalgic Encephalomyelitis (M.E) To Secretary of State for Health and Social Care Victoria Atkins MP I am writing to you as a concerned citizen and advocate for individuals suffering from severe Myalgic Encephalomyelitis (M.E.), urging the immediate establishment of a dedicated National …
In case you haven’t noticed, there hasn’t been a Minister for Disabled People, Health and Work in Government for the past 6 days. The previous role-holder was moved to the Home Office during the latest Cabinet reshuffle. Interestingly, every other newly vacant position has since been filled but not this one. The question has to …
Hi, As I have said a few times on social media this week, the article in The Times and Action for M.E reinforced what I have been saying for 18 months with my Shake It UP campaign. I have had too many conversations with M.E patients and their carers in which I have been told …
Hi, I don’t know about you but, for me, 2021 flew by! I’ve not kept track of what month we are in throughout the entire year! It’s all been very same-y and seasons have all blended from one to the other. I haven’t had the usual Foggy ‘milestones’ to judge where I’m at. This is …
Hi, As I said in this video, the responses received from Lord Kamall and NHS CEO Amanda Pritchard have so far not addressed my concerns about the need for this new system to report harms from non-pharmaceutical ‘treatments’. I have not yet received a reply from Sajid Javid MP – Secretary of State for Health …
Hi, As a social entrepreneur with ME Foggy Dog, I started beavering away behind the scenes on a new campaign in mid-August 2021. I knew the NICE guideline publication was coming, I also fully anticipated a backlash and non-compliance to the recommendations. I pre-empted the publication and got to work. I believe in transparency so …
Hello, This will be a lazy blog post as I am ‘depleted’ of energy…or at least, I have just about enough left to type this up briefly! Watch this video http://https://youtu.be/1Qabwxufnlg Read these links – Guide to the rules on APPGs Myalgic Encephalomyelitis APPG Register of All Party Parliamentary Groups – M.E After reading and …
Hello, Many of you will have seen my video from this morning, it has lead to a lot of questions from patients and a lot of alternative suggestions have been added into the mix. I am writing this blog partly to get my own thoughts into some semblance of order but also to give a …
