Hi, As M.E Foggy Dog supporters know, I started actively campaigning for an NHS protocol for severe M.E and better adherence to NICE guidelines in NHS hospitals in mid-February 2024. This blog specifically relates to the campaign for an NHS protocol. The NHS protocol is now 2 months along and I have made no progress …
Shake It UP continues – CAMPAIGN INFO This blog is a follow on from everything I said in this video 3 weeks ago. National Reporting and Learning System I contacted NICE to make sure that I wasn’t going to be pursuing this issue like a dog with a bone unnecessarily. I wanted to know – …
It’s been a long day of planning and researching for this benefit concert challenge so I’m cheating a bit, I posted this as a thread on X earlier but, as the algorithm means barely anyone will have seen it, and because many MEeps have left X for greener pastures, I am reposting it as a …
Myalgic Encephalomyelitis can happen to anyone, it does not discriminate in terms of age, sex, or race. It doesn’t care whether you have a ‘positive mental attitude’ or walk on the pessimistic side of life. You know THOSE people? THOSE people who say YOLO? (You Only Live Once) THOSE people who throw caution to the …
Hello! By now, you should all know that ME Foggy Dog has launched a concert challenge project called ‘Redefining Gravity’, it launched on Monday 17th July 2023 during this event to mark the launch of Foggy’s Global Challenge – yes – Foggy is back to global adventuring!! He’s currently on his way to Munich – …
Hi! I thought I had got out of the habit of ‘grabbing rest’ but it seems to have made a return due to the hot weather. I have fond (NOT) memories of needing to ‘grab rest’ when I worked full time, making the most of every spare second in which I could lay flat and …
Hi, As I have said a few times on social media this week, the article in The Times and Action for M.E reinforced what I have been saying for 18 months with my Shake It UP campaign. I have had too many conversations with M.E patients and their carers in which I have been told …
Hi, As I said in this video, the responses received from Lord Kamall and NHS CEO Amanda Pritchard have so far not addressed my concerns about the need for this new system to report harms from non-pharmaceutical ‘treatments’. I have not yet received a reply from Sajid Javid MP – Secretary of State for Health …
Hi, As a social entrepreneur with ME Foggy Dog, I started beavering away behind the scenes on a new campaign in mid-August 2021. I knew the NICE guideline publication was coming, I also fully anticipated a backlash and non-compliance to the recommendations. I pre-empted the publication and got to work. I believe in transparency so …
In just two weeks’ time, I turn 45. 45. Where did those years go?! My head still thinks I am 29 in my pre-M.E healthy body judging by the ridiculous non-M.E friendly things it still wants to do! My family have always been very open about all topics and the craziness and unusualness of the …
