Hi, As I have said a few times on social media this week, the article in The Times and Action for M.E reinforced what I have been saying for 18 months with my Shake It UP campaign. I have had too many conversations with M.E patients and their carers in which I have been told …
Hi, As I said in this video, the responses received from Lord Kamall and NHS CEO Amanda Pritchard have so far not addressed my concerns about the need for this new system to report harms from non-pharmaceutical ‘treatments’. I have not yet received a reply from Sajid Javid MP – Secretary of State for Health …
Hi, As a social entrepreneur with ME Foggy Dog, I started beavering away behind the scenes on a new campaign in mid-August 2021. I knew the NICE guideline publication was coming, I also fully anticipated a backlash and non-compliance to the recommendations. I pre-empted the publication and got to work. I believe in transparency so …
In just two weeks’ time, I turn 45. 45. Where did those years go?! My head still thinks I am 29 in my pre-M.E healthy body judging by the ridiculous non-M.E friendly things it still wants to do! My family have always been very open about all topics and the craziness and unusualness of the …
Hello, Many of you will have seen my video from this morning, it has lead to a lot of questions from patients and a lot of alternative suggestions have been added into the mix. I am writing this blog partly to get my own thoughts into some semblance of order but also to give a …
*Foggy* Hi! This year, Team Foggy will be taking part in our 7th M.E Awareness Week since we became AWESOME! (ME Foggy Dog was launched in July 2014). This year, my P.A will be hosting a virtual ‘International M.E Awareness Day’ event. It’ the first time she’s ever hosted an event on Zoom so it …
Myalgic Encephalomyelitis fluctuates, everything related to the condition ebbs and flows in terms of severity, duration, and priority. One thing remains constant though, the very annoying issue we have with sleep. You would think that an illness involving constant neuro-exhaustion would mean that I sleep a lot in order to ‘feel better’. Nope. More often …
This blog was inspired by a tweet I saw earlier today. The person who wrote the tweet was asking why more M.E patients weren’t involved in advocacy work and she commented how much more progress could be made if more patients got involved. Before I get started I should make it clear that nothing I …
Hello, I mentioned this subject in today’s FogPod podcast, the past week has been particularly concerning and upsetting for not only myself but many others within the M.E./C.F.S. community. I had consciously taken the decision to not engage with Twitter threads about the articles in various newspapers over the past week, other than to RT …
