Your Voice Matters: Why Contacting Your MP NOW is Crucial

Brown Concrete Building Near Body of Water.

Living with M.E. (Myalgic Encephalomyelitis) presents daily challenges that are often invisible and misunderstood. For too long, our community has faced systemic barriers in accessing the support we desperately need. Now, more than ever, it’s vital that our voices are heard by those in power, and that’s why contacting your Member of Parliament (MP) this week …

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Help to Establish the Impact of PIP Assessment Changes on People with M.E.

Close up of an open hand holding a coin outdoors.

Hi, As the Founder/Manager of M.E. Foggy Dog, I ensure that the voices of people living with Myalgic Encephalomyelitis (M.E.) are heard and that their experiences shape the conversations I have about disability rights, access to adequate and appropriate care, and government policies. That’s why I’m asking for a little bit of help from you! …

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‘Knives Out Theory’: How Hate, COVID19 Denial, and Neglect Drain the Energy of People with M.E.

On a wooden block is one knife laying down and one knife is jabbed into the wood.

Christine Miserandino’s ‘Spoon Theory’ helped chronically sick people explain their limited energy reserves to non-chronically sick people. However, in recent years, our precious energy reserves haven’t solely been used up by daily life, but also actively stolen by an all too frequently hostile world. This is where the Knives Out Theory comes in—people living with …

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Rethinking My Response To Andrew Gwynne MP During Last Week’s Instagram / Facebook Live

Wooden carved letters spell out the word RETHINK

Hello, I was unfair to Andrew Gwynne MP during Friday’s Instagram/Facebook Live and that is why I am writing this blog. I’ll admit that I skim read his letter response, received on 4th November 2024, as I am so used to getting generic replies it went in one eye and out the other. I only …

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Press Release – Open Letter to Secretary of State for Health and Social Care Victoria Atkins MP

[Embargo: For Immediate Release] Subject: Urgent Call for a NHS Protocol for Severe Myalgic Encephalomyelitis (M.E) To Secretary of State for Health and Social Care Victoria Atkins MP I am writing to you as a concerned citizen and advocate for individuals suffering from severe Myalgic Encephalomyelitis (M.E.), urging the immediate establishment of a dedicated National …

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Campaign For A New Mechanism To Report Harms from Non-Pharmaceutical ‘Treatments’ – A Collection Of Emails.

Hi, As a social entrepreneur with ME Foggy Dog, I started beavering away behind the scenes on a new campaign in mid-August 2021. I knew the NICE guideline publication was coming, I also fully anticipated a backlash and non-compliance to the recommendations. I pre-empted the publication and got to work. I believe in transparency so …

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