Living with M.E. (Myalgic Encephalomyelitis) presents daily challenges that are often invisible and misunderstood. For too long, our community has faced systemic barriers in accessing the support we desperately need. Now, more than ever, it’s vital that our voices are heard by those in power, and that’s why contacting your Member of Parliament (MP) this week …
Hi, As the Founder/Manager of M.E. Foggy Dog, I ensure that the voices of people living with Myalgic Encephalomyelitis (M.E.) are heard and that their experiences shape the conversations I have about disability rights, access to adequate and appropriate care, and government policies. That’s why I’m asking for a little bit of help from you! …
Hello! The Shake It UP next step is here! I ‘went live’ on YouTube earlier. You can watch the recording below (don’t forget to subscribe too so you don’t miss future content!). As I explained during the ‘live’, my own M.E. is currently causing me to not be able to function as well …
Christine Miserandino’s ‘Spoon Theory’ helped chronically sick people explain their limited energy reserves to non-chronically sick people. However, in recent years, our precious energy reserves haven’t solely been used up by daily life, but also actively stolen by an all too frequently hostile world. This is where the Knives Out Theory comes in—people living with …
Hello, I was unfair to Andrew Gwynne MP during Friday’s Instagram/Facebook Live and that is why I am writing this blog. I’ll admit that I skim read his letter response, received on 4th November 2024, as I am so used to getting generic replies it went in one eye and out the other. I only …
Hi, As many of you are aware, the Assisted Dying Bill is being introduced to Westminster on 17th October 2024 and will be debated/voted on later in the year. This is a contentious issue that many people have very strong and emotive opinions about. To be clear – I am not against euthanasia when a …
[Embargo: For Immediate Release] Subject: Urgent Call for a NHS Protocol for Severe Myalgic Encephalomyelitis (M.E) To Secretary of State for Health and Social Care Victoria Atkins MP I am writing to you as a concerned citizen and advocate for individuals suffering from severe Myalgic Encephalomyelitis (M.E.), urging the immediate establishment of a dedicated National …
In case you haven’t noticed, there hasn’t been a Minister for Disabled People, Health and Work in Government for the past 6 days. The previous role-holder was moved to the Home Office during the latest Cabinet reshuffle. Interestingly, every other newly vacant position has since been filled but not this one. The question has to …
Hello, This blog is a continuation of the blog written on 23rd October 2021 about the difficulties encountered when trying to obtain copies of the meeting minutes of APPG meetings about M.E. Needless to say that a lot of emails have been received and sent since the 23rd October! I now have copies of the …
Hi, As a social entrepreneur with ME Foggy Dog, I started beavering away behind the scenes on a new campaign in mid-August 2021. I knew the NICE guideline publication was coming, I also fully anticipated a backlash and non-compliance to the recommendations. I pre-empted the publication and got to work. I believe in transparency so …
