Hello, I was unfair to Andrew Gwynne MP during Friday’s Instagram/Facebook Live and that is why I am writing this blog. I’ll admit that I skim read his letter response, received on 4th November 2024, as I am so used to getting generic replies it went in one eye and out the other. I only …
Hi, As many of you are aware, the Assisted Dying Bill is being introduced to Westminster on 17th October 2024 and will be debated/voted on later in the year. This is a contentious issue that many people have very strong and emotive opinions about. To be clear – I am not against euthanasia when a …
[Embargo: For Immediate Release] Subject: Urgent Call for a NHS Protocol for Severe Myalgic Encephalomyelitis (M.E) To Secretary of State for Health and Social Care Victoria Atkins MP I am writing to you as a concerned citizen and advocate for individuals suffering from severe Myalgic Encephalomyelitis (M.E.), urging the immediate establishment of a dedicated National …
In case you haven’t noticed, there hasn’t been a Minister for Disabled People, Health and Work in Government for the past 6 days. The previous role-holder was moved to the Home Office during the latest Cabinet reshuffle. Interestingly, every other newly vacant position has since been filled but not this one. The question has to …
Hello, This blog is a continuation of the blog written on 23rd October 2021 about the difficulties encountered when trying to obtain copies of the meeting minutes of APPG meetings about M.E. Needless to say that a lot of emails have been received and sent since the 23rd October! I now have copies of the …
Hi, As a social entrepreneur with ME Foggy Dog, I started beavering away behind the scenes on a new campaign in mid-August 2021. I knew the NICE guideline publication was coming, I also fully anticipated a backlash and non-compliance to the recommendations. I pre-empted the publication and got to work. I believe in transparency so …
Hello, This will be a lazy blog post as I am ‘depleted’ of energy…or at least, I have just about enough left to type this up briefly! Watch this video http://https://youtu.be/1Qabwxufnlg Read these links – Guide to the rules on APPGs Myalgic Encephalomyelitis APPG Register of All Party Parliamentary Groups – M.E After reading and …
