Stepping away from my day‑to‑day life for four days shouldn’t feel like preparing for a marathon, but when you’ve lived with M.E for nearly two decades, even the gentlest birthday‑year adventure comes with its own side dish of realism, turning every small plan into a carefully orchestrated operation. After 12 years of advocacy and 20 …
Dear unpaid carers, Today, on International M.E. Awareness Day, I am in awe of each and every one of you. I’m writing this, thinking particularly of someone truly remarkable – Shauna. Shauna, your unwavering love and dedication to Row shines so brightly. To see your strength as you navigate the immense challenges of caring for …
Hi, As M.E Foggy Dog supporters know, I started actively campaigning for an NHS protocol for severe M.E and better adherence to NICE guidelines in NHS hospitals in mid-February 2024. This blog specifically relates to the campaign for an NHS protocol. The NHS protocol is now 2 months along and I have made no progress …
Hello, This will be a lazy blog post as I am ‘depleted’ of energy…or at least, I have just about enough left to type this up briefly! Watch this video http://https://youtu.be/1Qabwxufnlg Read these links – Guide to the rules on APPGs Myalgic Encephalomyelitis APPG Register of All Party Parliamentary Groups – M.E After reading and …
Hi, Foggy’s Followers on his social media platforms will have seen that I closed Foggy’s World Tour 2019/2020 yesterday due to issues brought about the COVID-19. Watch this video. eeks ago when travel bans and cancelled holidays/business trips started to cause problems with Foggy’s globetrotting. But, as the pandemic worsened I felt it would no …
