Hi, Since having COVID19 in March 2020, I have had a croaky voice that seems to flare on exertion. It’s now my main indicator that post-exertional malaise is on the horizon. My voice starts to ‘go’ about 20 minutes before I start feeling like I am moving in slow motion and my rainbow of symptoms …
Hi! I haven’t written one of these for a while. I haven’t felt able to write a spontaneous M.E-related blog that isn’t part of a wider campaign or doesn’t have a specific purpose. The world, and a big chunk of its residents, has got very serious and hardened. There seems to be very little light …
Hello, This blog is a continuation of the blog written on 23rd October 2021 about the difficulties encountered when trying to obtain copies of the meeting minutes of APPG meetings about M.E. Needless to say that a lot of emails have been received and sent since the 23rd October! I now have copies of the …
Long-standing Foggy Followers will know that I fairly regularly ‘step away’ from Foggy’s social media for a few days when everything gets a bit too much. I’ve been doing this increasingly more frequently over the past 6 months. I’m finding that, as a community, we have needed to be very reactive during the pandemic than …
*Foggy* Hi! This year, Team Foggy will be taking part in our 7th M.E Awareness Week since we became AWESOME! (ME Foggy Dog was launched in July 2014). This year, my P.A will be hosting a virtual ‘International M.E Awareness Day’ event. It’ the first time she’s ever hosted an event on Zoom so it …
Hi, Today marks the 13th anniversary of the start of my life with Myalgic Encephalomyelitis. Unsurprisingly, I won’t be having a party to mark the occasion. To clarify, it is not the 13th anniversary of having a diagnosis of M.E (I was diagnosed as having C.F.S by a GP 2 and a half years later) …
Getting a diagnosis of Myalgic Encephalomyelitis often takes years. My own diagnosis took well over 2 years and I have spoken virtually to sufferers who waited decades. This is partly due to a lack of awareness and knowledge of M.E within the medical profession – some of whom doubt that M.E is a ‘real’ illness. …
This blog was inspired by a tweet I saw earlier today. The person who wrote the tweet was asking why more M.E patients weren’t involved in advocacy work and she commented how much more progress could be made if more patients got involved. Before I get started I should make it clear that nothing I …
If you are easily offended I would suggest that you don’t read this blog. M.E. and sex is the last taboo subject that I haven’t covered with ME Foggy Dog since we started in 2014. Purely because it is a very personal subject. However, it is an important topic that needs to be out in …
I was supposed to record my ‘own radio show’ with a local radio station today; the plan was for me to talk about the 15 songs (chosen by me) that define who I am today and what I do in my working life. I chose the songs a week ago (I won’t spoil the surprise …
