Press Release – Open Letter to Secretary of State for Health and Social Care Victoria Atkins MP

[Embargo: For Immediate Release] Subject: Urgent Call for a NHS Protocol for Severe Myalgic Encephalomyelitis (M.E) To Secretary of State for Health and Social Care Victoria Atkins MP I am writing to you as a concerned citizen and advocate for individuals suffering from severe Myalgic Encephalomyelitis (M.E.), urging the immediate establishment of a dedicated National …

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Happy 13th ‘M.E’-Versary!

Hi, Today marks the 13th anniversary of the start of my life with Myalgic Encephalomyelitis. Unsurprisingly, I won’t be having a party to mark the occasion. To clarify, it is not the 13th anniversary of having a diagnosis of M.E (I was diagnosed as having C.F.S by a GP 2 and a half years later)  …

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For People New To Myalgic Encephalomyelitis – An Overview.

Getting a diagnosis of Myalgic Encephalomyelitis often takes years. My own diagnosis took well over 2 years and I have spoken virtually to sufferers who waited decades. This is partly due to a lack of awareness and knowledge of M.E within the medical profession – some of whom doubt that M.E is a ‘real’ illness. …

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