As our community navigates the complex and often brutal realities of energy-limiting conditions (ELCs) like Myalgic Encephalomyelitis (M.E.), we can sometimes find ourselves at the crossroads of language and lived experience. This was highlighted last week in comments posted in reply to a The Canary Facebook post that included these seemingly innocuous sentences in the …
We Did It! ME Foggy Dog Crowdfunder Hits 103%! An enormous, heartfelt thank you to every single one of you who contributed to the ME Foggy Dog crowdfunder! Thanks to your incredible generosity, we’ve not only reached our target, but we’ve surpassed it, achieving an amazing 103% of our goal! We’re absolutely blown away by …
Hi, I have a fuzzy brain this afternoon and whilst attempting to get a few ideas down on paper (email) to sort M.E. awareness artwork, I used Gemini (AI) to see if I could come up with a prevalence of M.E. in my hometown of Portsmouth. The M.E. Awareness Month poster will be displayed in …
Hi, As the Founder/Manager of M.E. Foggy Dog, I ensure that the voices of people living with Myalgic Encephalomyelitis (M.E.) are heard and that their experiences shape the conversations I have about disability rights, access to adequate and appropriate care, and government policies. That’s why I’m asking for a little bit of help from you! …
Hi, As many of you are aware, the Assisted Dying Bill is being introduced to Westminster on 17th October 2024 and will be debated/voted on later in the year. This is a contentious issue that many people have very strong and emotive opinions about. To be clear – I am not against euthanasia when a …
Calling all people living with Myalgic Encephalomyelitis (whether you have a diagnosis or not, if you meet the diagnostic criteria…you’re in!) Our stories are precious, vital chronicles of our experiences. Too often, our voices echo only within the bounds of our community. But the people who truly need to hear us – doctors, psychologists, NHS …
Living with Myalgic Encephalomyelitis (M.E.) is a battle I never expected to fight. The symptoms are relentless—overwhelming neuro-exhaustion, cognitive difficulties, and a host of other challenges that make everyday life feel like a marathon with no finish line. Yet, the struggle is not just against the disease itself, but also against the widespread misunderstanding and …
[Embargo: For Immediate Release] Subject: Urgent Call for a NHS Protocol for Severe Myalgic Encephalomyelitis (M.E) To Secretary of State for Health and Social Care Victoria Atkins MP I am writing to you as a concerned citizen and advocate for individuals suffering from severe Myalgic Encephalomyelitis (M.E.), urging the immediate establishment of a dedicated National …
It’s been a long day of planning and researching for this benefit concert challenge so I’m cheating a bit, I posted this as a thread on X earlier but, as the algorithm means barely anyone will have seen it, and because many MEeps have left X for greener pastures, I am reposting it as a …
Myalgic Encephalomyelitis can happen to anyone, it does not discriminate in terms of age, sex, or race. It doesn’t care whether you have a ‘positive mental attitude’ or walk on the pessimistic side of life. You know THOSE people? THOSE people who say YOLO? (You Only Live Once) THOSE people who throw caution to the …
