Hi! I thought I had got out of the habit of ‘grabbing rest’ but it seems to have made a return due to the hot weather. I have fond (NOT) memories of needing to ‘grab rest’ when I worked full time, making the most of every spare second in which I could lay flat and …
Hi, Since having COVID19 in March 2020, I have had a croaky voice that seems to flare on exertion. It’s now my main indicator that post-exertional malaise is on the horizon. My voice starts to ‘go’ about 20 minutes before I start feeling like I am moving in slow motion and my rainbow of symptoms …
Hi! I haven’t written one of these for a while. I haven’t felt able to write a spontaneous M.E-related blog that isn’t part of a wider campaign or doesn’t have a specific purpose. The world, and a big chunk of its residents, has got very serious and hardened. There seems to be very little light …
Myalgic Encephalomyelitis fluctuates, everything related to the condition ebbs and flows in terms of severity, duration, and priority. One thing remains constant though, the very annoying issue we have with sleep. You would think that an illness involving constant neuro-exhaustion would mean that I sleep a lot in order to ‘feel better’. Nope. More often …
It’s something I’ve said for years, my M.E often feels like I over-indulged the night before and I’m suffering for it. The issue I have with that is that M.E has brought about an intolerance to alcohol and has severely restricted my social life. I can’t remember the last time I had the opportunity to …
Hello! Foggy is snoring softly in Foggy HQ this morning, I’m letting him have a bit of a lie-in. He’s fidgeting so I know he’s dreaming about squirrel chasing! I’m making the most of the peace and quiet by writing this blog. As you know, I am in the process of setting up an online training …
Hi, I had a new symptom start around 6 months ago and, because of the infamous being ‘fobbed off’ incident, it was only investigated this week. Here’s what has been going on. I started to get pain in my right breast that could have been caused by any number of factors. I assumed it would …
Hello! Foggy is travelling to Christchurch, New Zealand and is surrounded by the bubbly loveliness that is first class (jiffy bag). To bide his time Foggy is going to tell you all about Sally’s issues with digestive problems. Sally has had problems with reactions to certain foods, bloating and discomfort (to name a few symptoms) her …
Hi, Payback is something that M.E/C.F.S. patients mention all the time, as a community we know what payback is and we don’t need to explain to each other how we are feeling. However, Foggy is all about raising awareness and as it’s been a while since I blogged about payback, it’s time for another go …
Hi, Having M.E sometimes turns me into a super sleuth. Just call me Miss Marple! Trying to work out exactly what has caused a symptoms flare can often be a fruitless task, purely because of the complex nature of our illness but sometimes the cause of discomfort can be nailed down and prevented. Many M.E …
