I want to be clear at the outset about what this piece is, and what it is not. Who Gets a Seat at the Table? Lobbying and Access in the UK is not a commentary on global politics, international relations, or any particular social issue. Like most people, I hold strong opinions in my private …
This blog is an informal write‑up of my recent trip to watch a Northampton Saints rugby match. It’s taken me a full week to have enough energy to write it, which probably tells you everything you need to know before you start reading. Before anything else, I need to be clear that I rested as …
In the space of a week, two separate political decisions have shaken confidence in the UK’s commitment to providing stable, compassionate, and evidence‑based healthcare. One affects people with very severe M.E./C.F.S., who have once again seen promised specialist care pushed into the distant future. The other concerns the sudden withdrawal of specialist training posts for …
Dear Secretary of State for Health and Social care, and Minister for Public Health and Prevention, Across the UK and internationally, clinicians and patient communities are observing a deeply concerning trend: individuals who experience multiple viral infections within a short period are increasingly developing long‑term, debilitating conditions such as Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (M.E./C.F.S.). One …
A relatively new term is making the rounds in media healthcare coverage: “Cyberchondria” It’s being used to describe people who search their symptoms online and become more anxious as a result. On the surface, it sounds like a harmless bit of jargon. However, for the Myalgic Encephalomyelitis (M.E) community, already battling decades of dismissal, misdiagnosis, …
The UK Government’s 2026 shift toward non‑pharmacological treatments (NPTs) and expanded social prescribing is being promoted as a move toward “personalised care,” but for people with Myalgic Encephalomyelitis (M.E), this policy change carries serious and often overlooked risks. This blog explores why the M.E community is uniquely vulnerable in this new landscape, and why urgent …
Happy New Year! I hope you all had a restful festive break. I took a few weeks away from M.E. Foggy Dog’s work over the Christmas period to recharge, but as many of you know, the wheels never truly stop turning. Even while resting, my mind was busy reflecting on our journey and where we …
For those of you who have been long-time Foggy Followers, you’ll know that my ongoing struggle with weight has been a recurring theme over the last seven-ish years, primarily due to an increasingly necessary sedentary lifestyle that has allowed the pounds to slowly but surely accumulate. This was mainly because my M.E. has slowly worsened …
Hello! Many of you will have seen recently that I have been doing a work/health balance audit; a month ago I deliberately stepped back from long-running M.E. work projects, projects that have been very brick wall-like and relentless in impacting my energy, and exited some collaborative NHS-related work groups (unpaid) to free up some time …
Foggy Followers! Halloween is creeping up, and we’ve brewed up something special for the M.E. community that doesn’t require broomsticks, bonfires, or bouncing off the walls with energy we don’t have. Introducing… Halloween Storytime with Foggy’s P.A.! 🧙♀️📖 We know that joining in with seasonal fun can be tricky when you live with M.E., energy …
