Are We Being Misinterpreted?

This extract from Piers Morgan’s book ‘Wake Up’ is the inspiration for this blog. It got me thinking about how our online patient community is perceived by those outside our ‘bubble’. It’s something that needs to be considered as it is those very people that we need to engage with our cause. ‘ If there …

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GET vs ‘Increased Activity’

This blog is in response to a Twitter exchange I experienced yesterday but also relates to the NICE guidelines review first draft. I had seen a tweet from a Long Covid patient; they had received a letter from their Respiratory Consultant and was ‘confused’ about the content. The Consultant was discharging her from Respiratory due …

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Life ‘Pawsed’

Hi, It’s been a while since I blogged ‘for fun’ and as it’s my birthday tomorrow I’m feeling a bit nostalgic and chatty! I’ve just given myself a birthday treat…..a bath! Pure indulgence that will make some symptoms flare but it was worth it. As I lay in the warm water I pondered how I …

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Long Covid Research Study – Research Protocol Implications For ‘Post-Covid M.E/C.F.S’ Patients.

As I am now also a ‘Long Hauler’, my family and I have been keeping our eyes peeled for any M.E appropriate research studies for me to participate in that may help my recovery. My Mum spotted an ad for the study highlighted in this blog post on Facebook and shared the information with me. …

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Complaint About Exercise and Covid19 Article.

Hello, I wrote a letter of complaint to the University of Wolverhampton regarding this article in which Prof. Wolman states- Post-viral fatigue is a well recognised condition following a viral infection. There has also been much debate in the medical literature about the existence of Myalgic Encephalomyelitis (ME) and whether this occurs following a viral …

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