Hi, It’s been a while since my last Foggy blog, coping with chronic Covid-19 on top of my usual M.E since March has certainly been a tougher slog than usual. Briefly, I am not recovered and still have lung/chest/rib pain and an excruciating ‘new’ headache that fluctuates. Blood clots are a concern so aspirin (low …
During my Facebook Live session earlier today (Follow Foggy on @FoggyDog to catch future ‘live’ sessions), I said I’d be interested to receive personal M.E stories from a wide range of patients. I specifically included those people who believe they may have been misdiagnosed with M.E. Shortly afterward I received a message from a Foggy …
Read morePernicious Anaemia and Myalgic Encephalomyelitis: Symptom, Co-Morbidity, or Misdiagnosis?
Hi, I’ve been struggling with ‘suspected’ Covid-19 for over 8 weeks, I posted about my Covid-19 experience on my personal Facebook page in the hope that it would educate friends who are medical professionals about the virus but also help friends who may develop the illness in future so they know what to expect. As …
Hi, Foggy’s Followers on his social media platforms will have seen that I closed Foggy’s World Tour 2019/2020 yesterday due to issues brought about the COVID-19. Watch this video. eeks ago when travel bans and cancelled holidays/business trips started to cause problems with Foggy’s globetrotting. But, as the pandemic worsened I felt it would no …
I have raised the issue mentioned in this post with my local CFS (Yes, I hate the term CFS (Chronic Fatigue Syndrome) but that is the name of the local service provided) service and they agree that it is ‘confusing’ and needs to be edited. I have also spoken to Portsmouth MPs Penny Mordaunt (during …
If there are suspicions that a policy or procedure is not fit for purpose and/or causing additional problems or harm, during the review process would you not put a disclaimer on the current guidelines? For example – use with caution, proceed with care, use personal judgement when considering whether it is appropriate ‘treatment’. It’s a …
With ME Foggy Dog, I double-check new research findings with the charity/organisation I represent to make sure we are aligned and consistent. Because Foggy and I are currently fundraising for Cure ME, I contacted the Cure ME research team to get their opinion on the latest published prevalence estimate, before deciding whether to accept the …
Read moreShould The M.E Patient Community Adopt The New Prevalence Estimate of 65 Million?
WOW. After over 5 years of M.E advocacy, it was wonderful to have my efforts recognised by the wider world on Wednesday evening. I receive awesome support from the global M.E community on a daily basis but having my work highlighted and celebrated on Wednesday evening was very special to me. What is the Directory …
Myalgic Encephalomyelitis fluctuates, everything related to the condition ebbs and flows in terms of severity, duration, and priority. One thing remains constant though, the very annoying issue we have with sleep. You would think that an illness involving constant neuro-exhaustion would mean that I sleep a lot in order to ‘feel better’. Nope. More often …
The clock is ticking and 2020 is fast approaching. The arrival of a new year has caused me to ponder the past year. Alongside the fun and excitement there have been many negative aspects that, more often than not, I choose not to publicise as it would negatively impact the mood of Foggy’s Followers. Being …
