Should The M.E Patient Community Adopt The New Prevalence Estimate of 65 Million?

With ME Foggy Dog, I double-check new research findings with the charity/organisation I represent to make sure we are aligned and consistent. Because Foggy and I are currently fundraising for Cure ME, I contacted the Cure ME research team to get their opinion on the latest published prevalence estimate, before deciding whether to accept the …

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M.E and Sleep

Myalgic Encephalomyelitis fluctuates, everything related to the condition ebbs and flows in terms of severity, duration, and priority. One thing remains constant though, the very annoying issue we have with sleep. You would think that an illness involving constant neuro-exhaustion would mean that I sleep a lot in order to ‘feel better’. Nope. More often …

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Foggy did some ‘work shadowing’ with Stripy Lightbulb CIC!

*Foggy* Helloooooo! It’s been a while! My P.A has been busy with her ‘other job, hmph! Last week, her ‘other job’ meant I had an adventure at Birmingham NEC and did some ‘work shadowing’ with Stripy Lightbulb CIC. I had a good look around the exhibition hall and saw some stuff that my awesome Foggy …

Read moreFoggy did some ‘work shadowing’ with Stripy Lightbulb CIC!