This blog was inspired by a tweet I saw earlier today. The person who wrote the tweet was asking why more M.E patients weren’t involved in advocacy work and she commented how much more progress could be made if more patients got involved. Before I get started I should make it clear that nothing I …
If you are easily offended I would suggest that you don’t read this blog. M.E. and sex is the last taboo subject that I haven’t covered with ME Foggy Dog since we started in 2014. Purely because it is a very personal subject. However, it is an important topic that needs to be out in …
I am currently in the process of deciding what I decor I want in my bedroom. We have been putting off decorating and refurbishing my bedroom for the last couple of years because of the impact it will have on my M.E. That is the topic of this blog. My room hasn’t been redecorated since …
I was supposed to record my ‘own radio show’ with a local radio station today; the plan was for me to talk about the 15 songs (chosen by me) that define who I am today and what I do in my working life. I chose the songs a week ago (I won’t spoil the surprise …
My memory has been so damaged by Myalgic Encephalomyelitis that I rarely remember anything long enough to gossip about it. I personally experience different forms of memory loss. I don’t remember much of my childhood, I’m not sure which bout of M.E. caused that, I had M.E. in my teenage years too, but I can’t …
Some of us remember when our ‘chronic’ illness started whilst others got ill over time. I can remember down to the hour when my M.E. ‘journey’ began. My last ‘well’ day was November 17th 2006, it also happened to be the day I graduated from University. The day when I felt unbeatable and on top …
Hello! 15 days to launch! As long-term Foggy Followers will know, I like to have defined year-long campaigns with a start and an end point. This is so that donors don’t get donation fatigue but also so that we can set targets for Foggy. Previous campaigns have made me realise something about myself, I don’t …
Good morning Foggy Followers! You know when, in the UK, the weather people say ‘don’t forget that you’ll lose an hour’s sleep tonight because of the clocks going forward?’. They could have told my body that, losing one hour’s sleep would have been lovely! Instead, I was awake at 01:57 (old time)….*sob*. I’m making the …
Hello, I mentioned this subject in today’s FogPod podcast, the past week has been particularly concerning and upsetting for not only myself but many others within the M.E./C.F.S. community. I had consciously taken the decision to not engage with Twitter threads about the articles in various newspapers over the past week, other than to RT …
Hello! It’s been a week with lots of rest at Foggy HQ. I’ve had an additional muggle infection and the antibiotic treatment certainly took it out of me. This means I’ll be working this weekend. Stripy Lightbulb launches on 27th March and my deadline to get stuff done is looming! I’ve also had a number …
