Living with M.E. (Myalgic Encephalomyelitis) presents daily challenges that are often invisible and misunderstood. For too long, our community has faced systemic barriers in accessing the support we desperately need. Now, more than ever, it’s vital that our voices are heard by those in power, and that’s why contacting your Member of Parliament (MP) this week …
Dear unpaid carers, Today, on International M.E. Awareness Day, I am in awe of each and every one of you. I’m writing this, thinking particularly of someone truly remarkable – Shauna. Shauna, your unwavering love and dedication to Row shines so brightly. To see your strength as you navigate the immense challenges of caring for …
Hi, This morning, I have received an email response from ME Foggy Dog’s constituency MP, Stephen Morgan after I wrote to him with my concerns about the DWP’s hateful rhetoric relating to ‘welfare reforms’. It’s been a long week so, for transparency, I’m going to just copy and paste both my email and the responses …
Imagine trying to juggle two demanding jobs at once. That’s the reality for the Minister for Social Security and Disability, currently Stephen Timms MP. But is it fair for disabled people? Is it effective? Many believe it’s time for a change. Right now, disability policy is tucked under the umbrella of broader social security responsibilities …
Hi, I have a fuzzy brain this afternoon and whilst attempting to get a few ideas down on paper (email) to sort M.E. awareness artwork, I used Gemini (AI) to see if I could come up with a prevalence of M.E. in my hometown of Portsmouth. The M.E. Awareness Month poster will be displayed in …
Hi, As the Founder/Manager of M.E. Foggy Dog, I ensure that the voices of people living with Myalgic Encephalomyelitis (M.E.) are heard and that their experiences shape the conversations I have about disability rights, access to adequate and appropriate care, and government policies. That’s why I’m asking for a little bit of help from you! …
Hello! The Shake It UP next step is here! I ‘went live’ on YouTube earlier. You can watch the recording below (don’t forget to subscribe too so you don’t miss future content!). As I explained during the ‘live’, my own M.E. is currently causing me to not be able to function as well …
Hi All, As many of you already know, M.E. Foggy Dog had been campaigning since November 2021 with Shake It UP demanding the creation of a reporting system to report adverse events from non-pharmaceutical ‘treatments. The associated petition, which had 9011 signatures and was accompanied by many hundreds of personal anecdotes of harm, was closed …
Christine Miserandino’s ‘Spoon Theory’ helped chronically sick people explain their limited energy reserves to non-chronically sick people. However, in recent years, our precious energy reserves haven’t solely been used up by daily life, but also actively stolen by an all too frequently hostile world. This is where the Knives Out Theory comes in—people living with …
Hello, I was unfair to Andrew Gwynne MP during Friday’s Instagram/Facebook Live and that is why I am writing this blog. I’ll admit that I skim read his letter response, received on 4th November 2024, as I am so used to getting generic replies it went in one eye and out the other. I only …
