Hi All, As many of you already know, M.E. Foggy Dog had been campaigning since November 2021 with Shake It UP demanding the creation of a reporting system to report adverse events from non-pharmaceutical ‘treatments. The associated petition, which had 9011 signatures and was accompanied by many hundreds of personal anecdotes of harm, was closed …
Christine Miserandino’s ‘Spoon Theory’ helped chronically sick people explain their limited energy reserves to non-chronically sick people. However, in recent years, our precious energy reserves haven’t solely been used up by daily life, but also actively stolen by an all too frequently hostile world. This is where the Knives Out Theory comes in—people living with …
Hello, I was unfair to Andrew Gwynne MP during Friday’s Instagram/Facebook Live and that is why I am writing this blog. I’ll admit that I skim read his letter response, received on 4th November 2024, as I am so used to getting generic replies it went in one eye and out the other. I only …
Hello! Team Foggy is back! Foggy and I don’t usually fully step away from work over the festive period but 2024 was a particularly tough year and we felt the need for a complete reset. Foggy slept and ate…slept and ate…… slept and ate….. I didn’t, I overindulged in Xmas movies and furbaby snuggles instead. …
Hello! I have had non-stop health rubbish going on since August, this blog is specifically about the past month! Pain, pain, and more pain! As people living with M.E. know, pain is exhausting. With that in mind, I typed basic info into Chat GPT and it has created a case study that explains everything that …
Hi, As many of you are aware, the Assisted Dying Bill is being introduced to Westminster on 17th October 2024 and will be debated/voted on later in the year. This is a contentious issue that many people have very strong and emotive opinions about. To be clear – I am not against euthanasia when a …
As you all know, I’ve been campaigning for a reporting system to report harms from non-pharmaceutical ‘treatments’ since November 2021 (after the NICE guideline was published). You can find all the history of the Shake It UP campaign here in one place. The latest part of this campaign has been to see if our reports …
Calling all people living with Myalgic Encephalomyelitis (whether you have a diagnosis or not, if you meet the diagnostic criteria…you’re in!) Our stories are precious, vital chronicles of our experiences. Too often, our voices echo only within the bounds of our community. But the people who truly need to hear us – doctors, psychologists, NHS …
This blog follows on from this ‘open letter’ I have posted the response received from Paralympics GB / Every Body Moves on social media in recent weeks but am now actioning the next step. Response received 7th September 2024. Dear Sally, Thank you for taking the time to write to us. We appreciate your concerns …
Hi, Many of you have now watched my short video on social media, this video was in reaction to the email received from DHSC in response to my letter relating to ME Foggy Dog’s NHS Protocol campaign. The response is as helpful as those received from the Health Ministers/Departments in Wales and Scotland. Here is …
