As our community navigates the complex and often brutal realities of energy-limiting conditions (ELCs) like Myalgic Encephalomyelitis (M.E.), we can sometimes find ourselves at the crossroads of language and lived experience. This was highlighted last week in comments posted in reply to a The Canary Facebook post that included these seemingly innocuous sentences in the …
We Did It! ME Foggy Dog Crowdfunder Hits 103%! An enormous, heartfelt thank you to every single one of you who contributed to the ME Foggy Dog crowdfunder! Thanks to your incredible generosity, we’ve not only reached our target, but we’ve surpassed it, achieving an amazing 103% of our goal! We’re absolutely blown away by …
Living with M.E. (Myalgic Encephalomyelitis) presents daily challenges that are often invisible and misunderstood. For too long, our community has faced systemic barriers in accessing the support we desperately need. Now, more than ever, it’s vital that our voices are heard by those in power, and that’s why contacting your Member of Parliament (MP) this week …
Dear unpaid carers, Today, on International M.E. Awareness Day, I am in awe of each and every one of you. I’m writing this, thinking particularly of someone truly remarkable – Shauna. Shauna, your unwavering love and dedication to Row shines so brightly. To see your strength as you navigate the immense challenges of caring for …
Hi, This morning, I have received an email response from ME Foggy Dog’s constituency MP, Stephen Morgan after I wrote to him with my concerns about the DWP’s hateful rhetoric relating to ‘welfare reforms’. It’s been a long week so, for transparency, I’m going to just copy and paste both my email and the responses …
Imagine trying to juggle two demanding jobs at once. That’s the reality for the Minister for Social Security and Disability, currently Stephen Timms MP. But is it fair for disabled people? Is it effective? Many believe it’s time for a change. Right now, disability policy is tucked under the umbrella of broader social security responsibilities …
Christine Miserandino’s ‘Spoon Theory’ helped chronically sick people explain their limited energy reserves to non-chronically sick people. However, in recent years, our precious energy reserves haven’t solely been used up by daily life, but also actively stolen by an all too frequently hostile world. This is where the Knives Out Theory comes in—people living with …
Hello! Team Foggy is back! Foggy and I don’t usually fully step away from work over the festive period but 2024 was a particularly tough year and we felt the need for a complete reset. Foggy slept and ate…slept and ate…… slept and ate….. I didn’t, I overindulged in Xmas movies and furbaby snuggles instead. …
Hello! I have had non-stop health rubbish going on since August, this blog is specifically about the past month! Pain, pain, and more pain! As people living with M.E. know, pain is exhausting. With that in mind, I typed basic info into Chat GPT and it has created a case study that explains everything that …
As you all know, I’ve been campaigning for a reporting system to report harms from non-pharmaceutical ‘treatments’ since November 2021 (after the NICE guideline was published). You can find all the history of the Shake It UP campaign here in one place. The latest part of this campaign has been to see if our reports …
