I have been campaigning to address the non-adherence to Myalgic Encephalomyelitis NICE guidelines in NHS hospitals since 24th February 2024. This campaign began with an ‘open letter’ to the General Medical Council. As I stated at the time, I knew that what I/we were demanding was outside of the GMC’s remit, however what I/we are …
Hi All, I’ve been waiting to see what letters would be published in the aftermath of the publication of THAT article (link below) on Long COVID Awareness Day (15th March), however, that was 5 days ago and no letters have been published, including mine which was submitted on 15th March. So, I am publishing it …
This ‘open letter’ was emailed to the GMC at 3pm today. The ‘Open letter to the General Medical Council signed by 282 people as at 12pm today (Organise are closing this letter as it ‘doesn’t meet their community standards’ #NoComment – NHS staff use this platform). Urgent Appeal to Address Non-Adherence to Myalgic Encephalomyelitis NICE …
[Embargo: For Immediate Release] Subject: Urgent Call for a NHS Protocol for Severe Myalgic Encephalomyelitis (M.E) To Secretary of State for Health and Social Care Victoria Atkins MP I am writing to you as a concerned citizen and advocate for individuals suffering from severe Myalgic Encephalomyelitis (M.E.), urging the immediate establishment of a dedicated National …
Hello! It occurred to me this week that Foggy’s ‘newer’ Followers may not know what Foggy’s global adventuring is for or how Foggy-sitting works. This blog is a refresher for ‘old’ Followers and a guide for those who discovered Foggy’s awesome-ness after 2020! As a social enterprise, ME Foggy Dog campaigns for increased Government research …
In case you haven’t noticed, there hasn’t been a Minister for Disabled People, Health and Work in Government for the past 6 days. The previous role-holder was moved to the Home Office during the latest Cabinet reshuffle. Interestingly, every other newly vacant position has since been filled but not this one. The question has to …
Today is Social Enterprise Day – a moment to raise awareness of our pioneering business model and celebrate the more than 100,000 social enterprises in the UK working to benefit people and planet. Social enterprises are businesses that trade for a social or environmental purpose. Our social purpose is to improve the quality of life …
Shake It UP continues – CAMPAIGN INFO This blog is a follow on from everything I said in this video 3 weeks ago. National Reporting and Learning System I contacted NICE to make sure that I wasn’t going to be pursuing this issue like a dog with a bone unnecessarily. I wanted to know – …
It’s been a long day of planning and researching for this benefit concert challenge so I’m cheating a bit, I posted this as a thread on X earlier but, as the algorithm means barely anyone will have seen it, and because many MEeps have left X for greener pastures, I am reposting it as a …
Hello, During the pandemic I have been fighting for M.E patients to have access to shielding and group 6 priority for vaccines but haven’t got anywhere, same as all other M.E organisations and national charities. I have been increasingly aware that being vaccinated doesn’t prevent infection or stop ‘mild’ infections from negatively impacting my M.E …
