Hi! I thought I had got out of the habit of ‘grabbing rest’ but it seems to have made a return due to the hot weather. I have fond (NOT) memories of needing to ‘grab rest’ when I worked full time, making the most of every spare second in which I could lay flat and …
Hi, As I have said a few times on social media this week, the article in The Times and Action for M.E reinforced what I have been saying for 18 months with my Shake It UP campaign. I have had too many conversations with M.E patients and their carers in which I have been told …
Transcript of ‘The Chronic Collaboration: Emergency Protest’ – FogPod podcast episode. Listen here – Patreon, Buzzsprout, or Spotify. More info about the campaign – The Canary article SUMMARY (for those who can’t read the full transcript) Intro to the show. This podcast/blog is about the Chronic Collaboration’s #DontLetMEDie protest in Westminster on 8th March …
Hello, I have just emailed the Secretary of State for Health and Social Care, Steve Barclay MP, again to ask for the UK Government to acknowledge that half of Long COVID meet the diagnostic criteria for M.E/C.F.S, I wrote the email with both of my ‘hats’ on (ME Foggy Dog and Stripy Lightbulb CIC) as …
What a strange year 2022 has been! So much potential but such limited ‘progress’ for our community. One step forward, three steps backward is how it’s been rolling for ME Foggy Dog this year, mostly due to the political turmoil in the UK, movement on any issue has felt impossible at times. But, we have …
Hi, Sorry I haven’t posted an update for a while but other than emailing Steve Barclay MP, Secretary of State for Health and Social Care, and sharing information about the petition left, right, and centre, I haven’t had anything to report. Until now. I wrote to the Care Quality Commission (ENGLAND) on the 15th November …
Hello! Halloween is Foggy’s SECOND favourite time of the year! (Christmas is his first favourite… OBVIOUSLY) We have always marked the occasion in one way or another and this year we’d love YOU to join in! We won’t be asking for any donations, or expecting anyone to spend any money on materials to be able …
**Sensitive topic** From the outset, I want to make it clear that I consider myself to be in a place of privilege where this cost of living crisis is concerned. I wrote about my own personal financial situation a few years ago, and those circumstances have not changed. I am fortunate to have a good …
Hi, Since having COVID19 in March 2020, I have had a croaky voice that seems to flare on exertion. It’s now my main indicator that post-exertional malaise is on the horizon. My voice starts to ‘go’ about 20 minutes before I start feeling like I am moving in slow motion and my rainbow of symptoms …
Hi, This blog is an update to – Blood donation, M.E and Long Covid. The key theme of my concerns with this issue was summed up with this paragraph in the email sent to Stephen Morgan MP (see previous blog) – ‘I strongly believe there needs to be a nationwide communication strategy about M.E and …
