‘House-or-bedbound’: Accurate Lived Experience, Not Offensive Language

Silhouette of a person against a window in the background

As our community navigates the complex and often brutal realities of energy-limiting conditions (ELCs) like Myalgic Encephalomyelitis (M.E.), we can sometimes find ourselves at the crossroads of language and lived experience. This was highlighted last week in comments posted in reply to a The Canary Facebook post that included these seemingly innocuous sentences in the …

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List of Reasons Why This Redefining Gravity Benefit Concert Is Needed

Sally Callow speaking at the 2023/2024 Launch Event for ME Foggy Dog

It’s been a long day of planning and researching for this benefit concert challenge so I’m cheating a bit, I posted this as a thread on X earlier but, as the algorithm means barely anyone will have seen it, and because many MEeps have left X for greener pastures, I am reposting it as a …

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ME Foggy Dog’s Highlights of 2021

Hi, I don’t know about you but, for me, 2021 flew by! I’ve not kept track of what month we are in throughout the entire year! It’s all been very same-y and seasons have all blended from one to the other. I haven’t had the usual Foggy ‘milestones’ to judge where I’m at. This is …

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APPGs on Myalgic Encephalomyelitis – Where are the minutes?

Hello, This will be a lazy blog post as I am ‘depleted’ of energy…or at least, I have just about enough left to type this up briefly! Watch this video http://https://youtu.be/1Qabwxufnlg Read these links – Guide to the rules on APPGs Myalgic Encephalomyelitis APPG Register of All Party Parliamentary Groups – M.E After reading and …

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