Let’s not sugarcoat it: Labour has a disability problem, and the way they’ve handled the so-called “welfare reform” bill proves it. Despite over nine months of relentless work by charities, disability organisations, and disabled people themselves, educating MPs, sharing lived experience, and offering real solutions, the bill passed through Parliament with barely a nod to …
A shadow is looming over the disabled community: the potential return of widespread, mandatory face-to-face assessments for the Personal Independence Payment (PIP). While the world has tentatively embraced a “new normal” post-pandemic, for many disabled people, a key accessibility measure introduced during the crisis is under threat. The push by some MPs to reinstate in-person …
Hello! The Shake It UP next step is here! I ‘went live’ on YouTube earlier. You can watch the recording below (don’t forget to subscribe too so you don’t miss future content!). As I explained during the ‘live’, my own M.E. is currently causing me to not be able to function as well …
Hi All, As many of you already know, M.E. Foggy Dog had been campaigning since November 2021 with Shake It UP demanding the creation of a reporting system to report adverse events from non-pharmaceutical ‘treatments. The associated petition, which had 9011 signatures and was accompanied by many hundreds of personal anecdotes of harm, was closed …
Hello, I was unfair to Andrew Gwynne MP during Friday’s Instagram/Facebook Live and that is why I am writing this blog. I’ll admit that I skim read his letter response, received on 4th November 2024, as I am so used to getting generic replies it went in one eye and out the other. I only …
Hi, As M.E Foggy Dog supporters know, I started actively campaigning for an NHS protocol for severe M.E and better adherence to NICE guidelines in NHS hospitals in mid-February 2024. This blog specifically relates to the campaign for an NHS protocol. The NHS protocol is now 2 months along and I have made no progress …
[Embargo: For Immediate Release] Subject: Urgent Call for a NHS Protocol for Severe Myalgic Encephalomyelitis (M.E) To Secretary of State for Health and Social Care Victoria Atkins MP I am writing to you as a concerned citizen and advocate for individuals suffering from severe Myalgic Encephalomyelitis (M.E.), urging the immediate establishment of a dedicated National …
In case you haven’t noticed, there hasn’t been a Minister for Disabled People, Health and Work in Government for the past 6 days. The previous role-holder was moved to the Home Office during the latest Cabinet reshuffle. Interestingly, every other newly vacant position has since been filled but not this one. The question has to …
Hi, As I have said a few times on social media this week, the article in The Times and Action for M.E reinforced what I have been saying for 18 months with my Shake It UP campaign. I have had too many conversations with M.E patients and their carers in which I have been told …
Hi, I don’t know about you but, for me, 2021 flew by! I’ve not kept track of what month we are in throughout the entire year! It’s all been very same-y and seasons have all blended from one to the other. I haven’t had the usual Foggy ‘milestones’ to judge where I’m at. This is …
