This blog is in response to a Twitter exchange I experienced yesterday but also relates to the NICE guidelines review first draft. I had seen a tweet from a Long Covid patient; they had received a letter from their Respiratory Consultant and was ‘confused’ about the content. The Consultant was discharging her from Respiratory due …
Since the start of my advocacy back in 2014, it has been very clear to me that many people in the wider world, outside of our M.E bubble, don’t care about Myalgic Encephalomyelitis because it doesn’t affect them personally. They don’t know anyone with the illness (that they are aware of – nondisclosure, anybody?!) and …
Hi, It’s been a while since I blogged ‘for fun’ and as it’s my birthday tomorrow I’m feeling a bit nostalgic and chatty! I’ve just given myself a birthday treat…..a bath! Pure indulgence that will make some symptoms flare but it was worth it. As I lay in the warm water I pondered how I …
As I am now also a ‘Long Hauler’, my family and I have been keeping our eyes peeled for any M.E appropriate research studies for me to participate in that may help my recovery. My Mum spotted an ad for the study highlighted in this blog post on Facebook and shared the information with me. …
This is a subject that I have been pondering quite a bit over the past few weeks due to being both a M.E patient (14 years, this 23rd November) and ‘Long Hauler’ (since 23rd March). Having both illnesses has given me a wide view of chronic illness patients’ expectations and diagnostic ‘journey’. When I initially …
Hello, I wrote a letter of complaint to the University of Wolverhampton regarding this article in which Prof. Wolman states- Post-viral fatigue is a well recognised condition following a viral infection. There has also been much debate in the medical literature about the existence of Myalgic Encephalomyelitis (ME) and whether this occurs following a viral …
Accumulatively, a few tweets and TV show segments have turned this week, in my life as an M.E/C.F.S and Long Covid patient and M.E/C.F.S advocate, into an emotional rollercoaster ride. This post addresses two of these instances. Every single stigmatising comment anyone has ever made about Myalgic Encephalomyelitis has now been polished off and reused …
Hi, It’s been a while since my last Foggy blog, coping with chronic Covid-19 on top of my usual M.E since March has certainly been a tougher slog than usual. Briefly, I am not recovered and still have lung/chest/rib pain and an excruciating ‘new’ headache that fluctuates. Blood clots are a concern so aspirin (low …
During my Facebook Live session earlier today (Follow Foggy on @FoggyDog to catch future ‘live’ sessions), I said I’d be interested to receive personal M.E stories from a wide range of patients. I specifically included those people who believe they may have been misdiagnosed with M.E. Shortly afterward I received a message from a Foggy …
Hi, I’ve been struggling with ‘suspected’ Covid-19 for over 8 weeks, I posted about my Covid-19 experience on my personal Facebook page in the hope that it would educate friends who are medical professionals about the virus but also help friends who may develop the illness in future so they know what to expect. As …
