Covid-19 Journey Through Facebook Posts

Hi, I’ve been struggling with ‘suspected’ Covid-19 for over 8 weeks, I posted about my Covid-19 experience on my personal Facebook page in the hope that it would educate friends who are medical professionals about the virus but also help friends who may develop the illness in future so they know what to expect. As …

Read more

All Good Things Come To An End

Hi, Foggy’s Followers on his social media platforms will have seen that I closed Foggy’s World Tour 2019/2020 yesterday due to issues brought about the COVID-19. Watch this video. eeks ago when travel bans and cancelled holidays/business trips started to cause problems with Foggy’s globetrotting. But, as the pandemic worsened I felt it would no …

Read more

CFS Support Services – ‘Self-Help’

I have raised the issue mentioned in this post with my local CFS (Yes, I hate the term CFS (Chronic Fatigue Syndrome) but that is the name of the local service provided) service and they agree that it is ‘confusing’ and needs to be edited. I have also spoken to Portsmouth MPs Penny Mordaunt (during …

Read more

Common Sense and The NICE Guidelines Review

If there are suspicions that a policy or procedure is not fit for purpose and/or causing additional problems or harm, during the review process would you not put a disclaimer on the current guidelines? For example – use with caution, proceed with care, use personal judgement when considering whether it is appropriate ‘treatment’. It’s a …

Read more

Directory of Social Change Awards 2020

Sally Callow - winner of the 'Influencer' category at the Directory of Social Change Awards 2020

WOW. After over 5 years of M.E advocacy, it was wonderful to have my efforts recognised by the wider world on Wednesday evening. I receive awesome support from the global M.E community on a daily basis but having my work highlighted and celebrated on Wednesday evening was very special to me. What is the Directory …

Read more

M.E and Sleep

Myalgic Encephalomyelitis fluctuates, everything related to the condition ebbs and flows in terms of severity, duration, and priority. One thing remains constant though, the very annoying issue we have with sleep. You would think that an illness involving constant neuro-exhaustion would mean that I sleep a lot in order to ‘feel better’. Nope. More often …

Read more

Christmas Is Not M.E Friendly

Hello from Santa’s Grotto! (AKA our tinsel-bombed conservatory!). I am a big kid (I know, you never would have guessed…right?!) and love Christmas fun. Weirdly, so does Foggy! However, making things look tacky…sorry….sparkly and Christmassy, takes effort. For the other 11 and a half months, I struggle to find energy to get through a basic …

Read more

Foggy did some ‘work shadowing’ with Stripy Lightbulb CIC!

*Foggy* Helloooooo! It’s been a while! My P.A has been busy with her ‘other job, hmph! Last week, her ‘other job’ meant I had an adventure at Birmingham NEC and did some ‘work shadowing’ with Stripy Lightbulb CIC. I had a good look around the exhibition hall and saw some stuff that my awesome Foggy …

Read more