Myalgic Encephalomyelitis fluctuates, everything related to the condition ebbs and flows in terms of severity, duration, and priority. One thing remains constant though, the very annoying issue we have with sleep. You would think that an illness involving constant neuro-exhaustion would mean that I sleep a lot in order to ‘feel better’. Nope. More often …
The clock is ticking and 2020 is fast approaching. The arrival of a new year has caused me to ponder the past year. Alongside the fun and excitement there have been many negative aspects that, more often than not, I choose not to publicise as it would negatively impact the mood of Foggy’s Followers. Being …
Hello from Santa’s Grotto! (AKA our tinsel-bombed conservatory!). I am a big kid (I know, you never would have guessed…right?!) and love Christmas fun. Weirdly, so does Foggy! However, making things look tacky…sorry….sparkly and Christmassy, takes effort. For the other 11 and a half months, I struggle to find energy to get through a basic …
*Foggy* Helloooooo! It’s been a while! My P.A has been busy with her ‘other job, hmph! Last week, her ‘other job’ meant I had an adventure at Birmingham NEC and did some ‘work shadowing’ with Stripy Lightbulb CIC. I had a good look around the exhibition hall and saw some stuff that my awesome Foggy …
Hi, Today marks the 13th anniversary of the start of my life with Myalgic Encephalomyelitis. Unsurprisingly, I won’t be having a party to mark the occasion. To clarify, it is not the 13th anniversary of having a diagnosis of M.E (I was diagnosed as having C.F.S by a GP 2 and a half years later) …
It’s something I’ve said for years, my M.E often feels like I over-indulged the night before and I’m suffering for it. The issue I have with that is that M.E has brought about an intolerance to alcohol and has severely restricted my social life. I can’t remember the last time I had the opportunity to …
This blog is inspired by a comment I received on a PACE-related Foggy post a while ago by one of my medical professional friends. She has followed Foggy for a while and is very supportive of my efforts, she was simply playing devil’s advocate. She asked how M.E patient advocates are any different from MMR …
First things first, M.E is not a mental health condition. However, the devastating impact it has on the lives of patients can trigger mental health issues such as anxiety, PTSD and depression. That’s not entirely surprising considering M.E is a life-stealer. It turns outgoing, sociable, life-loving human beings into empty shells of their former selves. …
Pardon? Could you say that again? Could you turn the TV up, please? Eh? *Nodding* (As if I heard what they said but didn’t hear a word!) I say and do all of the above regularly during an M.E flare. I have no idea if it is an M.E thing or not but thought I’d …
Hello, Foggy got back from his Poland adventure earlier today and is now snoring softly in Foggy HQ. Next up is a trip to New York with Nigel and co. Foggy can’t wait!! While Foggy is asleep, otherwise known as keeping out of trouble, I am taking the opportunity to write this blog. The origins …
