Hi, Despite being extra unwell with Covid19/Long Covid myself, I have been beavering away in the background (as much as my weary M.E-slammed body would allow) to try and make ‘the powers that be’ as aware as possible that Covid19 had the potential to cause chronic illness in many people during a pandemic…..any pandemic. My …
Well, that was certainly energy draining! ME Foggy Dog has learned from past experience of taking part in M.E awareness months and took the decision to ‘only’ actively take part in M.E awareness week this year. As a M.E patient myself, I simply do not have the energy to ‘up my efforts’ for a whole …
*Foggy* Morning! My P.A has woken up at stupid o’clock again. She has a really bad back and made the mistake of attempting to turn over in her sleep. OUCH. I’ve told her to make the most of her awake-ness and write a blog. It’s a blog we’ve been meaning to write for a while …
This extract from Piers Morgan’s book ‘Wake Up’ is the inspiration for this blog. It got me thinking about how our online patient community is perceived by those outside our ‘bubble’. It’s something that needs to be considered as it is those very people that we need to engage with our cause. ‘ If there …
Well, that was a day I wasn’t expecting when I woke up this morning! My car, Foggy’s ‘limo’, was booked in for its MOT. I booked the appointment a week ago and have been managing my energy over the past few days to make sure I had to energy and/or was well enough to take …
As Foggy’s Followers are aware, the 2019-20 World Tour was abruptly cut short 6 weeks early! (*Foggy* Sob hic!) due to Covid19. Add to that the fact that his P.A caught Covid19 around the same time that the World Tour stopped, and you can see why we didn’t celebrate the 2019-20 World Tour as much …
This blog is in response to a Twitter exchange I experienced yesterday but also relates to the NICE guidelines review first draft. I had seen a tweet from a Long Covid patient; they had received a letter from their Respiratory Consultant and was ‘confused’ about the content. The Consultant was discharging her from Respiratory due …
Since the start of my advocacy back in 2014, it has been very clear to me that many people in the wider world, outside of our M.E bubble, don’t care about Myalgic Encephalomyelitis because it doesn’t affect them personally. They don’t know anyone with the illness (that they are aware of – nondisclosure, anybody?!) and …
Hi, It’s been a while since I blogged ‘for fun’ and as it’s my birthday tomorrow I’m feeling a bit nostalgic and chatty! I’ve just given myself a birthday treat…..a bath! Pure indulgence that will make some symptoms flare but it was worth it. As I lay in the warm water I pondered how I …
As I am now also a ‘Long Hauler’, my family and I have been keeping our eyes peeled for any M.E appropriate research studies for me to participate in that may help my recovery. My Mum spotted an ad for the study highlighted in this blog post on Facebook and shared the information with me. …
