Foggy would like to tell you all about the link between Hypermobility Syndrome and M.E. Sally has both….Foggy just thought Sally was bendy!
Foggy thinks that Sally is on a huge learning curve with this campaign; she is learning things about her own body as the campaign progresses! Foggy has used all of his doggy memory to put together a timeline of Sally’s illnesses since childhood; maybe you will be as baffled as we are about how a lot of NHS doctors haven’t linked it all together!
Baby years – Tested for Coeliac disease, belly button hernia
14-16 – undiagnosed illness. Lots of tests….2 years of sporadic school non attendance due to extreme fatigue, feeling fluey, nausea
18 – diagnosed with Hypermobility Syndrome – joints had become very painful
24 – Generally unwell, skin rashes, swollen tongue, started anti-candida diet
27 – Severe reactions to stress started – swollen tongue, heart palpitations, panic attacks -issued with an Epi-pen when reaction very severe.
30 – Labyrinthitis ear infection – lasted 6 weeks…….and then 2 weeks later..
30 – Start of all sensory migraines and M.E (Although it took over 2 years for her to be diagnosed)
31 – Allergies and intolerances started.
36 – Depression
All of the above can be found under the umbrella of M.E.
Patch has told Foggy that Sally has always been a bit sickly and ‘a delicate little flower’. None of us realised that everything could be linked together. So, Sally isn’t just raising awareness for others; this campaign is helping her get her head around why she has always been ‘not quite right’.
Foggy has attached a link for Hypermobility Syndrome. It lists symptoms and causes etc. What it doesn’t mention is the crazy spine-tingling sensation that is extremely disconcerting and causes Sally to wriggle about when she has been sitting for too long!
Sally had physiotherapy when she was 18 to help with the Hypermobility Syndrome. It didn’t really help but it did temporarily help with posture etc. At the grand old age of 37 she now sees a Chiropractor who helps to ‘reset’ her joints. Her neck is particularly mobile and that causes a lot of discomfort.
Foggy snogs xxxx