This is a subject that I have been pondering quite a bit over the past few weeks due to being both a M.E patient (14 years, this 23rd November) and ‘Long Hauler’ (since 23rd March). Having both illnesses has given me a wide view of chronic illness patients’ expectations and diagnostic ‘journey’. When I initially …
Hello, I wrote a letter of complaint to the University of Wolverhampton regarding this article in which Prof. Wolman states- Post-viral fatigue is a well recognised condition following a viral infection. There has also been much debate in the medical literature about the existence of Myalgic Encephalomyelitis (ME) and whether this occurs following a viral …
Accumulatively, a few tweets and TV show segments have turned this week, in my life as an M.E/C.F.S and Long Covid patient and M.E/C.F.S advocate, into an emotional rollercoaster ride. This post addresses two of these instances. Every single stigmatising comment anyone has ever made about Myalgic Encephalomyelitis has now been polished off and reused …
Hi, It’s been a while since my last Foggy blog, coping with chronic Covid-19 on top of my usual M.E since March has certainly been a tougher slog than usual. Briefly, I am not recovered and still have lung/chest/rib pain and an excruciating ‘new’ headache that fluctuates. Blood clots are a concern so aspirin (low …
During my Facebook Live session earlier today (Follow Foggy on @FoggyDog to catch future ‘live’ sessions), I said I’d be interested to receive personal M.E stories from a wide range of patients. I specifically included those people who believe they may have been misdiagnosed with M.E. Shortly afterward I received a message from a Foggy …
Hi, I’ve been struggling with ‘suspected’ Covid-19 for over 8 weeks, I posted about my Covid-19 experience on my personal Facebook page in the hope that it would educate friends who are medical professionals about the virus but also help friends who may develop the illness in future so they know what to expect. As …
I have raised the issue mentioned in this post with my local CFS (Yes, I hate the term CFS (Chronic Fatigue Syndrome) but that is the name of the local service provided) service and they agree that it is ‘confusing’ and needs to be edited. I have also spoken to Portsmouth MPs Penny Mordaunt (during …
If there are suspicions that a policy or procedure is not fit for purpose and/or causing additional problems or harm, during the review process would you not put a disclaimer on the current guidelines? For example – use with caution, proceed with care, use personal judgement when considering whether it is appropriate ‘treatment’. It’s a …
With ME Foggy Dog, I double-check new research findings with the charity/organisation I represent to make sure we are aligned and consistent. Because Foggy and I are currently fundraising for Cure ME, I contacted the Cure ME research team to get their opinion on the latest published prevalence estimate, before deciding whether to accept the …
WOW. After over 5 years of M.E advocacy, it was wonderful to have my efforts recognised by the wider world on Wednesday evening. I receive awesome support from the global M.E community on a daily basis but having my work highlighted and celebrated on Wednesday evening was very special to me. What is the Directory …
