During my Facebook Live session earlier today (Follow Foggy on @FoggyDog to catch future ‘live’ sessions), I said I’d be interested to receive personal M.E stories from a wide range of patients. I specifically included those people who believe they may have been misdiagnosed with M.E. Shortly afterward I received a message from a Foggy …
Hi, I’ve been struggling with ‘suspected’ Covid-19 for over 8 weeks, I posted about my Covid-19 experience on my personal Facebook page in the hope that it would educate friends who are medical professionals about the virus but also help friends who may develop the illness in future so they know what to expect. As …
I have raised the issue mentioned in this post with my local CFS (Yes, I hate the term CFS (Chronic Fatigue Syndrome) but that is the name of the local service provided) service and they agree that it is ‘confusing’ and needs to be edited. I have also spoken to Portsmouth MPs Penny Mordaunt (during …
If there are suspicions that a policy or procedure is not fit for purpose and/or causing additional problems or harm, during the review process would you not put a disclaimer on the current guidelines? For example – use with caution, proceed with care, use personal judgement when considering whether it is appropriate ‘treatment’. It’s a …
With ME Foggy Dog, I double-check new research findings with the charity/organisation I represent to make sure we are aligned and consistent. Because Foggy and I are currently fundraising for Cure ME, I contacted the Cure ME research team to get their opinion on the latest published prevalence estimate, before deciding whether to accept the …
WOW. After over 5 years of M.E advocacy, it was wonderful to have my efforts recognised by the wider world on Wednesday evening. I receive awesome support from the global M.E community on a daily basis but having my work highlighted and celebrated on Wednesday evening was very special to me. What is the Directory …
The clock is ticking and 2020 is fast approaching. The arrival of a new year has caused me to ponder the past year. Alongside the fun and excitement there have been many negative aspects that, more often than not, I choose not to publicise as it would negatively impact the mood of Foggy’s Followers. Being …
Hello from Santa’s Grotto! (AKA our tinsel-bombed conservatory!). I am a big kid (I know, you never would have guessed…right?!) and love Christmas fun. Weirdly, so does Foggy! However, making things look tacky…sorry….sparkly and Christmassy, takes effort. For the other 11 and a half months, I struggle to find energy to get through a basic …
*Foggy* Helloooooo! It’s been a while! My P.A has been busy with her ‘other job, hmph! Last week, her ‘other job’ meant I had an adventure at Birmingham NEC and did some ‘work shadowing’ with Stripy Lightbulb CIC. I had a good look around the exhibition hall and saw some stuff that my awesome Foggy …
This blog is inspired by a comment I received on a PACE-related Foggy post a while ago by one of my medical professional friends. She has followed Foggy for a while and is very supportive of my efforts, she was simply playing devil’s advocate. She asked how M.E patient advocates are any different from MMR …
