Describing the Indescribable

Hi, I have woken up feeling very M.E’y. While I am feeling IT I am going to try my best to describe what IT feels like. In today’s case, IT is extreme fatigue and disequilibrium. The combination is definitely a bit of a mind blower in terms of adjectives! My entire body seems to have …

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M.E. and Me – Ryn’s Guest Blog

Hello, Before M.E I had a challenging career I loved, socialised regularly with family & friends, rode my pushbike & rambled miles for fun, played a very hands-on role with my grandchildren, rarely sat down to watch t.v preferring to garden, clean the car or do housework. I rarely slowed down! Almost three years ago …

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Newly diagnosed

Hi, This blog is going to address how newly diagnosed M.E sufferers will not have a clue about what is about to hit them like a freight train. I was diagnosed after 3 years of tests and being given the run around by doctors. The life altering diagnosis was given to me by a locum doctor. …

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Dizzy

Hi, I have a new piece of furniture in my bedroom and it has been the perfect excuse for a de-clutter. So, yesterday I, in half hour bursts of energy, threw stuff away and sorted old books. I came across my 2008 diary. My M.E symptoms began in 2008 and it makes for an interesting …

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Banks and businesses

Hi, I have made a rare trip out of my house this morning to get some admin done. My dad (thanks Dad – I still can’t drive because of dizziness) drove me into town and I went into my bank branch for an appointment. The woman in front of me had a walking stick, she …

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Love Life

Hello! I’ve told Sally to be brave and write this blog. She has just read this Chronic illness blog post and I want her to tell her story of dating with M.E. So here goes…. Hi, I never dreamed that I would be nearly 40 and still single. Like much of the single population, I have to …

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People Pleaser

Hello, I am guilty of ‘do what I say, not do what I do’. I am always banging on about pacing and taking care of yourselves. However, my actions over the Easter weekend have resulted in 6 weeks of additional illness. Let me explain. One of my close friends was on a very important course …

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‘Super-fit’

Hello, Myalgic Encephalomyelitis affects people in all areas of society. Young, old, rich, poor but also the ‘super fit’ and those people who would rather poke themselves in the eye with a big stick instead of *gulp* go to a gym! With his in mind, today’s blog will concentrate on previously ‘superfit’ M.E sufferers. This …

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Why ME? What makes me so different?

Hello, One of my internal questions that has the ability to drive me to distraction is ‘Why me?’. So many of my friends regularly catch bugs and infections and get back to their pre-illness lives within a short period of time. I have fabulous friends, many of whom are physically fit, driven professionals who work …

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