Technology and Self-Employment

Hi, I wrote this blog back in 2015, in it I explain how technology, phones and social media, is draining. My life has changed significantly since then so I am going to explain how technology affects my life now. I have my own business…wooo get me! (Update – Business closed in Sept 2018 to set up …

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Question

Hi, So, I asked Foggy’s Followers to send questions for me to answer in a blog. They could be about M.E./CFS, Foggy’s campaign, or about me personally. I’m an open book so happy to answer whatever is thrown at me. I received a question from Megan.Rose06 on Instagram. She asked: When were you diagnosed with …

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Inconsistency

Hello, Sometimes, reading other people’s accounts of their M.E experience is like reading a foreign language. In the 10 years since my diagnosis, I have only ever received a CBT referral. Despite having a wide range of symptoms, for which there are specialists, I have never been referred. So when other M.E sufferers talk about …

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‘Of course that happens…it’s your M.E.’

Hi, How many of us have visited chiropractors, dentists, physios etc and been fobbed off with ‘Of course that happens, it’s your M.E’? It’s happened to me hundreds of times! I’m writing this blog because it seems bizarre to me that we are always being told that the healthcare profession either doesn’t believe it’s a …

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Invisible Disability

Apologies, I have had to take my eye off the M.E. ball for the past 6 days.  I have been doing the bare minimum for Foggy and I feel bad for it. As you may or may not be aware, my dad has been exceptionally ill since Monday and his diagnosis required ambulances, A & …

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Open Letter to Eastenders

Hello, I have a question. Why has Myalgic Encephalomyelitis (M.E.) not been represented in any of your storylines since your show started in 1985? It affects 250,000 people here in the UK and EVERYONE knows someone who has the illness. I am asking you to be brave and bold, highlight an enormously misunderstood life-altering illness …

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Read Cat’s M.E. story

Foggy has asked M.E. sufferers to write him a blog post on their own personal M.E story. This lovely lady called Cat met Foggy at his launch and has written this blog post for him. Please read how M.E has affected her life. Hello Foggy, I would say my M.E journey has been a slow …

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Crazy What Ifs!

Hi, Foggy is in Tuscany! He had his first plane flight of this World Tour yesterday and loved every minute…I’m sure his tail will have wagged throughout the journey….;) This blog post was inspired by a Sunday afternoon chat I had with my Mum about our thoughts and guilt about the possible causes of my …

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Rhia’s M.E. Story

My name is Rhia. I am 22 years old and was diagnosed with M.E. in November 2016. I’ve had a lot of my symptoms for a few years, but they really started to show in 2015. M.E is a variable illness. Sometimes I can be absolutely fine and other times I feel so rubbish that …

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