Driving and M.E.

Hello, Foggy is on his way to China so I’m making the most of the peace and quiet. I’m writing this blog about driving because a few things have happened in the past couple of months that are worth mentioning. I have always been proud of the fact that I am a good driver. I …

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Fidgeting With Hyper-Mobility Syndrome

Hi, I’m off to Amsterdam with Hattie the Otter and family later today and I have told Sally to get some work done while I am away. She wants to tell you all about how her Hypermobility Syndrome symptom (HMS) of fidgeting (not really a symptom but you’ll see what we mean in a bit) …

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Weight and M.E.

Hi, This is an issue that has bugged me for years – how do people with M.E lose weight? Now I’m not talking about people with severe M.E who are often drastically under-weight because of the condition. This blog relates more to mild/moderate sufferers. I went to an M.E conference a few years ago and …

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Brain Inflammation

Hi, Foggy is still winging his way to Melbourne to see the Emerge Australia gang (9 days and counting….eek). I’m making the most of the peace and quiet and, in slow time, getting ready for our M.E Awareness Week events next week (full info on mefoggydog.org). The week so far has been very busy and …

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Work with M.E….Next Chapter

Hi! I wrote a blog about M.E and work way back in 2014 when I was in full-time employment Work blog. How times have changed! At the time, I couldn’t be 100% truthful as to the full extent of my inability to do this library job as I didn’t want to lose my job! I left …

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PACE Trial: The Movie

Hi, Now this is going to a random blog post but it was inspired by watching The Rainmaker during a rest afternoon yesterday. Anyone who hasn’t seen this 1997 film, sorry but I’m going to spoil the ending for you! It struck me that there are similarities between John Grisham’s fictional tale and our real …

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Explaining M.E. to children

Hi, Yesterday, I attended a local International Women’s Day/Young Women’s Day event. I was taking part in speed meetings which gave girls aged 11-19 a chance to talk to ‘inspirational women’. I took Foggy along to show how I raise awareness of Myalgic Encephalomyelitis (M.E) and I think having a soft toy there helped them …

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2008: Mid-Diagnosis

This illness is making my life drain away and it doesn’t feel like I have much left. 13 months of misery is just too much to bear without being diagnosed yet. It feels as if I’ve lost most of my friends because I can’t put the time/energy into those friendships, and it now grates every …

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Awareness Reach

Hi, Insomnia has hit again and, although I hit the wall yesterday, I feel ‘normal’ and am getting on with stuff. I’m sure it will hit FULL FORCE later today though. I am wondering how much of an impact all of my, and many others, attempts at awareness raising is making on a grassroots level. …

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GET/PACE Trial

Hello, I haven’t commented on this previously because I am not a medical expert and thought I’d leave it to charities etc to discuss it fully. ME Foggy Dog concentrates on raising awareness of ME from a human perspective and usually avoids serious political stuff. However, I have now had a few days to think …

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