Team Foggy and my new business Stripy Lightbulb’s Non-Executive Director Yvonne had a great time in London yesterday. We went to the London School of Hygiene and Tropical Medicine to see the Cure M.E/M.E/CFS biobank team.
The main reason for the visit was to talk about Stripy Lightbulb CIC, my new social enterprise. Community Interest Companies work for the benefit of communities. In our case, the community involved is the M.E/C.F.S community. As it says on our new legal documents, Stripy Lightbulb CIC works for the ‘benefit of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (M.E/C.F.S) patient community’.
Our community will benefit in 3 ways:
- The stigma surrounding the illness will lessen as a result of the training and awareness-raising
- The support patients receive from participants of the training will be more beneficial and appropriate to the condition.
- Surplus will be put towards M.E/C.F.S research funding, of which there is a severe shortage.
These points are made in our legal documents in our statement of activities and related benefit.
The Cure M.E team meeting came about because I want them to be the beneficiary of our ‘surplus’ (profits). After meeting the team yesterday, I am very happy and am 100% sure that I made the right decision. I had asked to be able to have info about their latest research on the new Stripy Lightbulb website, for additional information but also to reinforce what I was teaching and to add weight to the CIC. Cure M.E have offered support and even more assistance than had been anticipated and I am very grateful for that.
Foggy and Stripy are two completely separate entities, Foggy is for advocacy and Stripy is for education. Both have the same goal – to raise research funding. I’m going to try and not mix the two too much in the future as they both have different audiences and objectives, but I want to let Foggy’s Followers in on the excitement that is going on at the moment!
Foggy came along for the ride as some of his fundraising, via the ME Association, ended up at the biobank. He wanted to take a look around! He also loved having his ego massaged a lot yesterday…..the Cure M.E team were well and truly ‘Foggy’d’!
In a nutshell, Stripy Lightbulb CIC will offer online M.E/C.F.S training for healthcare/education/business professionals. All of whom have a duty of care over M.E/C.F.S patients.
The biggest tasks ahead are getting these professionals to recognise the need for training and also pay for it! Paying for it = research funding.
I need to say thank you to Foggy Follower Claire Thomson. Claire is an accountant. Claire has been a lifesaver this week. Claire has been able to transform my attempts at working out figures into a cash flow forecast. Thank you Claire and lots and lots of Foggy snogs coming your way xxx
As I mentioned on Twitter this week, thanks also have to go to James, my website guy. Fortunately, James now knows me, after doing Foggy’s website for over 3 years. he knows how my brain works and also understands that I know barely anything about I.T! Just because I WANT an e-learning platform, doesn’t mean I know anything about them!! James has been very helpful with support and advice. Together, I’m sure we will do a fantastic job!
That’s it for now. Apologies if this blog is a bit rambly, I was awake at 2.37 AM….I was clearly over, over, overtired yesterday.
(and Foggy OBVIOUSLY)