Everyone…meet ‘Fred the Head’

Hello!

I experienced a sudden onset of symptoms earlier and it occurred to me that ‘payback’ always starts with the same sensation. I get a tingling, heavy sensation at the back of my head, where the Occipital bone is located on the skull. From this point my head gets heavier and heavier, to the point that I feel an overwhelming need to get horizontal.

Pre-Foggy I used to own a therapy business; I offered Indian Head Massage (and Reflexology) treatments to clients. This is why I know a something about head anatomy. I remember, as part of a training session, another trainee therapist gave me a head massage. Massage and manipulation of the Occipital bone is part of a treatment, it’s ‘where most stress tension’ is held on the head. The sensation was overwhelming and I felt sick and dizzy for the rest of the day. That area is obviously particularly sensitive for me. I am now wondering if this is, even in a tiny way, linked to my own M.E.

To show you where I mean I have taken a couple of pictures of ‘Fred the Head’; he used to come with me to holistic fayres and sit on my table (Phrenology is nothing to do with Indian Head Massage but I love the look of him). Now he takes pride of place on the bookcase…memories of past achievement I guess. I have no idea how I managed to work full time and have my own business at weekends and evenings; there is no way I could do that now. My symptoms have definitely worsened since Foggy. I am managing through pacing and healthy eating though.

Where the red dot is where the ‘payback’ symptoms start. It is at the top of the spinal column/neck. From here the physical sensation gradually spread to the top of my head, my face gets very hot and I get swollen glands in my neck. Another sufferer recently described the feeling as like a bowling ball on the top of a spindly stick. It is at this point that speech difficulties and brain fog worsen. The sensation then spreads downwards and my spine starts to feel like spaghetti and I can’t hold myself upright. I am VERY lucky….this usually reaches its peak when I am safe and sound at home; near a bed after a long day.

Anyone interested in Phrenology might like to know…..that part of the skull is said to relate to a love of animals….appropriate!!

Sally xx