Hi, I was joined by Kat Gower, Linda Hending, and Steve Topple to record a podcast about the need for a new reporting system to report harms from non-pharmaceutical ‘treatments’. In case you are unfamiliar with ME Foggy Dog’s campaign, you can read all information and find all relevant links here – Shake It Up …
Hello, This blog is a continuation of the blog written on 23rd October 2021 about the difficulties encountered when trying to obtain copies of the meeting minutes of APPG meetings about M.E. Needless to say that a lot of emails have been received and sent since the 23rd October! I now have copies of the …
Hi, As a social entrepreneur with ME Foggy Dog, I started beavering away behind the scenes on a new campaign in mid-August 2021. I knew the NICE guideline publication was coming, I also fully anticipated a backlash and non-compliance to the recommendations. I pre-empted the publication and got to work. I believe in transparency so …
Hello, This will be a lazy blog post as I am ‘depleted’ of energy…or at least, I have just about enough left to type this up briefly! Watch this video http://https://youtu.be/1Qabwxufnlg Read these links – Guide to the rules on APPGs Myalgic Encephalomyelitis APPG Register of All Party Parliamentary Groups – M.E After reading and …
In just two weeks’ time, I turn 45. 45. Where did those years go?! My head still thinks I am 29 in my pre-M.E healthy body judging by the ridiculous non-M.E friendly things it still wants to do! My family have always been very open about all topics and the craziness and unusualness of the …
Hello, This is a blog I haven’t felt comfy about writing simply because I am now really unsure as to where the overlap is between my M.E symptoms and those which are entirely down to Covid19 – ‘Long Covid. My health is currently an awful lot of ifs, buts, and maybes and it’s not a …
Hello, Many of you will have seen my video from this morning, it has lead to a lot of questions from patients and a lot of alternative suggestions have been added into the mix. I am writing this blog partly to get my own thoughts into some semblance of order but also to give a …
Hello, I’m not going to write a very wordy blog giving readers my opinion on what is, or is not, happening right now in terms of biopsychsocial approaches within M.E/C.F.S ‘treatments’, the NICE guidelines delay (currently day 9), and Long Covid ‘treatments’ and research. I am going to give you ‘information’ in the form of …
Firstly, I think the Paralympic Games are an amazing opportunity for people with many disabilities and so this blog is not about the athletes themselves, or the notion of a Games for disabled people, but rather about the narrative promoted by the organising committee. I believe it creates a 2-tier level of what disabilities are, …
Wow, where do I start? ‘Team Foggy’ are back (on Monday) after having a 2 week break from social media, blogging, and podcasting. As I said in this blog, it all got a bit too much and I needed to step away for a bit. I knew I needed to ease back from everything and …
