Hello, I’m sure I am not the only person out there who keeps hold of mementos and items of random stuff that hold lots of great and emotive memories. This blog is about how I have been using some of mine negatively (without meaning to), and they are a constant reminder of what could have been if I …
Hello! Well, there are 36 days left!! So much has happened in the past 11 months, Foggy (and Sally’s) heads are spinning in the whirlwind! Foggy starts the long trek back from the Philippines now; he’ll soon be back in the UK. In the meantime Sally has written a blog for you all to read. …
Hello! Foggy is STILL in the Philippines (3 week long trip!), so I am going to write another blog while we wait for him to set his paws back down in the UK….he’s given his permission of course 😉 Last week I attended a M.E. awareness talk in Burgess Hill run by ReMEmber. One of …
Hello!! I haven’t written about symptoms for a while so this blog will be about the inability to regulate body temperature. Fortunately, I can use today as an example to highlight how tricky it can be. Today I attended a 4 hour staff training event. It was informative and enjoyable; however, the building it was …
Hello! Foggy asked for guest bloggers to write blog posts for him; this is a guest blog post from Rachel, a mild M.E. sufferer. Hi, Glandular fever swept through our sixth form college like wildfire; which isn’t that abnormal amongst a group of 17-year-olds I guess. Except I never seemed to get better. I was …
Hello, Foggy is resting his paws in Deal, Kent; waiting to jet off to the Philippines on Sunday morning. He has given me permission to write another blog post. Hi, I have made some truly wonderful friends through this campaign and I hope these lovely people are now lifelong amigos. They constantly praise my efforts …
Hello, It was International ME/CFS Awareness Day on the 12th May and to mark the occasion and to ‘do my bit’, I gave an informal, awareness raising talk in a lecture theatre at the University of Portsmouth (Thank you for allowing me use of the facilities for a private venture – much appreciated). In the …
Hello! I experienced a sudden onset of symptoms earlier and it occurred to me that ‘payback’ always starts with the same sensation. I get a tingling, heavy sensation at the back of my head, where the Occipital bone is located on the skull. From this point my head gets heavier and heavier, to the point …
Hello! Foggy is loving his time in Brisbane, Australia with Sally’s mum Carol. Foggy wants people to realise that it doesn’t matter where you live in the world you could either have, or know someone who has M.E. So, Sally was given the task of contacting an M.E. organisation in Australia to see if they …
Hi, Since returning to the UK from Italy, I have had worse than normal ME symptoms. This is what ME sufferers call ‘payback’, It’s kind of ‘you had a fantastic time and now you are going to pay for it’. My own personal payback usually kicks in 2 days after the exertion and lasts a …
