Our stories are precious, vital chronicles of our experiences.

Too often, our voices echo only within the bounds of our community.

But the people who truly need to hear us – doctors, psychologists, NHS managers, and government officials – remain largely uninformed about the devastating impact of this illness.

If you would like your story to be included in our compendium, which will be presented to those people in righteous fury, then this is your opportunity.

Share your story, or even a snippet, whatever you can manage. Whether it’s 100 words or 2,500, every voice matters.

Feel free to express sadness, anger, hope, or optimism, but above all, be truthful.

Please avoid naming any medical professionals unless quoting from publicly available material.

Otherwise, anything goes. Tell us your story, and we’ll tell the world.

You can be named or anonymous – your choice.

Martin Lev, a child actor who played gangster Dandy Dan in the film Bugsy Malone, killed himself in 1992. He suffered from M.E.

Thirty years later, we are still seeing this happen. From suicides to assisted dying, this is unacceptable. Help us to bring an end to inaction, neglect and indifference.

Send your stories to Chris Ritchie: chrisritchie75@gmail.com

This is an expansion of the pandemic book project Chris and I have been co-producing since February 2024.

Reminders

• No one is being paid for contributions to/working on this project
• Any proceeds will go to M.E. organisations to benefit pwME
• International contributions are welcome

The post Compendium: We Want To Include YOUR M.E. Story first appeared on ME Foggy Dog.