Comments on: Explaining M.E. to children

By: Unknown

Unknown — Thu, 10 May 2018 09:34:47 +0000

My 13yr old with ME always says to me when he relapses ''I'm not tired, i'm really WEAK'', he also says it feels like he can't get any air into his lungs. Other common words he uses are of course DIZZY and FEELING SICK when he stands up. He describes sharp pains as feeling as if a NEEDLE IS STICKING IN HIM.
Hope that helps.
kind regards Sharon (ME sufferer with 3 out of 4 children affected (one recovered, and a sister with Fibromyalgia)

By: Sally Callow

Sally Callow — Wed, 14 Mar 2018 07:53:16 +0000

Thanks for the info and feedback! x

By: Celine

Celine — Wed, 14 Mar 2018 07:51:09 +0000

Hello. I am going to give an answer that is not exactly opposite, as it goes in the same direction of what you ask : how to explain that illness in simple terms.

I thought maybe it can help someone to read this blog article below. I have found it helpful myself. What I find tricky in metaphors is they can be seen as "a way of seeing things" and so may also be seen "an imaginary thing" as well, when not connected/anchored in reality/observation/personal experiences... I would say ... talking about this illness is a "beautiful pedagogic challenge" :-D

dr Myhill uses the car metaphor and the money metaphor.

I liked those metaphors below. This is how I feel. the different metaphors encapsulates the frustration of not being able to do as much as we would want to, and the ... toxicity/dangers of doing too much.

good luck fellow human ! talking about chronic illness can create connection to THE HEART and so, water seeds of love and compassion <3 in whoever is ready.

this is so good to hear about projects like this ! beautiful !
cheers !
o/

https://tipsforme.wordpress.com/2017/09/28/metaphors/