Comments on: ‘Payback’ or Post Exertion Malaise

By: Kristina Schwende

Kristina Schwende — Sun, 14 Jun 2015 05:03:50 +0000

You have great wisdom my friend 😊. My energy reserves are so low that it feels impossible for me not to over-extend myself. My stepson was visiting this weekend. I did really well the first day he was here. Then, this evening, while already feeling quite weak, launched into a 45 minute philosophical debate (which normally I would have loved)! I knew I was talking too much but just kept going…sigh. When will I learn?? LOL

By: Sally Burch

Sally Burch — Sat, 13 Jun 2015 06:46:29 +0000

Like you my payback is 48 hours later. For me, I have the added worry that each payback can potentially carry a sting in its tail – it can permanently lower my ability level.
I find that rest in the 24 hours after the event (no matter if I am still feeling "well") is very important.
Great blog!

By: Sally Callow

Sally Callow — Fri, 12 Jun 2015 18:35:08 +0000

No, Foggy is fit and well…his paws are getting a little bit tired now though

By: Anonymous

Anonymous — Fri, 12 Jun 2015 18:33:43 +0000

whoops and forgot to ask how Foggy is doing! not travelsick yet? 😉

By: Anonymous

Anonymous — Fri, 12 Jun 2015 18:33:30 +0000

hmmyeah that's recurrent EBV for ya ;/

By: Kristina Schwende

Kristina Schwende — Fri, 12 Jun 2015 03:26:45 +0000

I'm sorry that you are dealing with severe payback. I can relate to everything you said. I recently saw a new doctor and I could tell by her questions that she wondered if I was exhausted because of depression… sigh. Unless someone has ME or a thorough understanding of it, they simply don't understand how doing something fun can be bad for us. But exertion is exertion; ME-CFS doesn't care whether it's fun or not. Please take care of yourself and PLEASE try not to overdo it (I know, easier said than done).